#ItsMyDNA

23andMe has auctioned customer BioData.

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Read the Guardian Plan

LAST UPDATED: 6/4/2025 8:30 AM

SUPPORTERS
University of California, Santa Cruz
University of California, San Diego
The Light Collective
University of California, Santa Cruz
University of California, San Diego
The Light Collective
WHO WILL OWN OUR MEDICAL DATA?

A personal property rights issue

Over 15 million Americans trusted 23andMe. Now the company has auctioned off customer DNA and BioData to the highest bidder.

23andMe, one of the world’s largest genetic biobanks, is too important to lose.

This is not just a transaction. It’s a turning point – a chance to model a new stewardship approach that restores trust and activates a virtuous cycle of greater research participation. This leads to richer datasets, which in turn drive better insights, diagnostics, treatments, and cures for individuals, patients and society as a whole.

Join us in establishing The Global BioData Trust—a nonprofit initiative to secure, protect and ethically govern personal DNA, genetic and related health data.

We believe in a better option

We intend to secure our DNA and put it into a public trust, so that we each have a say in how our DNA and biodata is used.

Read the Guardian Plan LAST UPDATED:

WHY IT MATTERS

Why protect the 23andMe member DNA data?

Trust
Nearly 2 million users have lost trust and requested data deletion, creating a chilling effect on current and future research and slowing breakthroughs for individuals and all of us.
Transparency
The lack of transparency in this sale process further erodes public confidence, raising fears about hidden motives, undisclosed buyers, and the fate of sensitive genetic data.
Research
23andMe hosts one of the world’s largest genetic research biobanks. But when trust and transparency break down, research suffers—individual participation drops, and the path to new discoveries and cures grows longer.

Let’s safeguard our DNA

SIGN PETITION
MEDIA COVERAGE

Stay informed

23andMe bankruptcy prompts Cornyn-Grassley-Klobuchar bipartisan bill to protect sensitive genetic data
Read Story
Bankrupt DNA testing firm 23andMe to be purchased for $256m
Read Story
Here’s What Potential 23andMe Buyers Could Do with Your Genetic Data
Read Story
23andMe’s DNA data is going up for sale. Here’s why companies might want it.
Read Story
23andMe co-founder lashes out at CEO Wojcicki after bankruptcy filing, says board lacked oversight
Read Story
DNA Data from 23andMe to be Auctioned
Read Story
THE MOVEMENT

Get involved

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The Petition
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Guardian Plan
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The Mission
SUPPORTERS

Join Us

Consuli is a Public Benefit Corporation that serves as an agent for individuals, helping them aggregate their health data and participate in clinical trials and data-driven research. Consuli ensures ethical engagement, informed consent, and fair benefit-sharing—advancing individual rights while accelerating progress in science and medicine. Consuli is also a cofounder, convener and interim steward of The Global BioData Trust.

Founded in 1920, the National Health Council brings diverse organizations together to forge consensus and drive patient-centered health policy.
Prebys Foundation partners with leaders to transform San Diego County through the arts, healthcare, medical research, and youth success.
Dedicated to improving the lives of others by promoting medical research and education.
University of California, San Diego
UC San Diego is transforming California and a diverse global society by educating, generating and disseminating knowledge and creative works, and engaging in public service.
The mission of the San Diego Supercomputer Center is to advance the frontiers of science, technology, education and society through innovations in data and computing. Its vision is to be a global leader in delivering integrated data and computing solutions that enable translational research, diverse partnerships and talent development.
University of California, Santa Cruz
As a preeminent public research university, UC Santa Cruz transforms California and the world through groundbreaking discoveries, creative scholarship, public service, and an inclusive student-centered learning environment that empowers students to become engaged global leaders.
Cultivating Values, Ethics, & Innovation for a more Just, Equitable, & Viable Future
The Light Collective
The Light Collective is a patient-led organization whose mission is to advance the collective rights, interests, and voices of patient communities in health technology.
Join Us
GOVERNANCE

To our policymakers

We honor your leadership in making recommendations to safeguard your constituents from the potential misuse of personal health and genetic data brought about by the 23andMe data breach and subsequent U.S. Chapter 11 bankruptcy filing.
We respectfully urge a pause on a deletion suggestion in favor of the Global BioData Trust solution. This is an important opportunity to both safeguard your constituents’ personal health data and preserve the benefits to owning their health research.
CONTACT YOUR REPRESENTATIVE
#ItsMyDNA

23andMe has auctioned customer BioData. Let’s get our DNA back.

SIGN PETITION

Read the Guardian Plan

LAST UPDATED:

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