MyBioBankSM

The future of medicine
is personal
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COMING SOON ON

Make it
Personal

Your biodata bank gives you full ownership and control over your most personal biological information — from your DNA and biometrics to your health records, lifestyle patterns, and even your biological samples. You choose who can access it, how it’s used, and what benefits you gain from it.

Claim & control your biodata

It’s your data, claim it so you get to decide when where and how your data is used.

Genetic & Biological Data

These are among the most sensitive and uniquely identifiable forms of biodata.

Genomic data / DNA sequences
Whole-genome or exome sequencing results
Genetic predisposition reports (e.g., risk markers for certain conditions)
Ancestry & heritage profiles
Epigenetic markers
Microbiome data

Biometric Identifiers

Data that relates to physical characteristics and is often used for authentication.

Fingerprints
Facial recognition data
Iris or retina scans
Voice prints
Gait/locomotion signatures
Palm vein or hand geometry data

Physiological & Health-Related Data

Collected via healthcare systems, wearables, or sensors.

Vital signs (heart rate, blood pressure, respiration)
Medical imaging (X-rays, MRI scans, ultrasounds)
Electronic health records (EHRs)
Lab test results (blood panels, hormone levels, biomarkers)
Sleep data
Activity/fitness metrics (steps, VO₂ max, stress tracking)
Medication records
Immunization history

Behavioral & Lifestyle Data

These describe how a person lives, moves, and behaves.

Movement & location patterns
Dietary habits or nutrition logs
Exercise routines
Digital behavior patterns (swipe patterns, typing cadence)
Cognitive or neurobehavioral testing results

Reproductive & Developmental Data

Sensitive categories often overlooked.

Fertility data
Pregnancy history
Menstrual cycle tracking
Hormonal cycles
Early-life developmental records

Environmental & Exposure Data

Modern biodata banks increasingly store context data as well.

Exposure to pollutants or allergens
Geolocation-linked environmental metrics
Lifestyle-linked risk exposures

Personal Biological Samples

Not just the digital data — the physical materials as well.

DNA samples (saliva, blood spot cards)
Stored tissue samples
Blood / plasma samples
Cell lines derived from the individual

#ItsMyDNA

23andMe has auctioned customer BioData. Let’s get our DNA back.

Read the Guardian Plan

MEDIA COVERAGE

Stay informed

23andMe’s DNA data is going up for sale. Here’s why companies might want it.
Here’s What Potential 23andMe Buyers Could Do with Your Genetic Data
DNA Data from 23andMe to be Auctioned
THE MOVEMENT

Get involved

Sign

The Petition

Read

Guardian Plan

Share

The Mission

About

From data sharing to data stewardship,
from participation to partnership-the new
covenant between patients, science and
society. The Global BioData Trust is the
bridge between personal sovereignty and
collective progress.

LEARN MORE

SUPPORTERS

Join Us

Consuli is a Public Benefit Corporation that serves as an agent for individuals, helping them aggregate their health data and participate in clinical trials and data-driven research. Consuli ensures ethical engagement, informed consent, and fair benefit-sharing—advancing individual rights while accelerating progress in science and medicine. Consuli is also a cofounder, convener and interim steward of The Global BioData Trust.

Founded in 1920, the National Health Council brings diverse organizations together to forge consensus and drive patient-centered health policy.
Prebys Foundation partners with leaders to transform San Diego County through the arts, healthcare, medical research, and youth success.
Dedicated to improving the lives of others by promoting medical research and education.
University of California, San Diego
UC San Diego is transforming California and a diverse global society by educating, generating and disseminating knowledge and creative works, and engaging in public service.
The mission of the San Diego Supercomputer Center is to advance the frontiers of science, technology, education and society through innovations in data and computing. Its vision is to be a global leader in delivering integrated data and computing solutions that enable translational research, diverse partnerships and talent development.
University of California, Santa Cruz
As a preeminent public research university, UC Santa Cruz transforms California and the world through groundbreaking discoveries, creative scholarship, public service, and an inclusive student-centered learning environment that empowers students to become engaged global leaders.
GOVERNANCE

To our policymakers

We honor your leadership in making recommendations to safeguard your constituents from the potential misuse of personal health and genetic data brought about by the 23andMe data breach and subsequent U.S. Chapter 11 bankruptcy filing.
We respectfully urge a pause on a deletion suggestion in favor of the Global BioData Trust solution. This is an important opportunity to both safeguard your constituents’ personal health data and preserve the benefits to owning their health research.
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