Petition To Protect And Preserve Our Biological Data
Sign the Petition
WHO WILL OWN OUR MEDICAL DATA?
A personal property rights issue
Over 15 million Americans trusted 23andMe. Now the company has auctioned off customer DNA and BioData to the highest bidder.
23andMe, one of the world’s largest genetic biobanks, is too important to lose.
This is not just a transaction. It’s a turning point – a chance to model a new stewardship approach that restores trust and activates a virtuous cycle of greater research participation. This leads to richer datasets, which in turn drive better insights, diagnostics, treatments, and cures for individuals, patients and society as a whole.
Join us in establishing The Global BioData Trust—a nonprofit initiative to secure, protect and ethically govern personal DNA, genetic and related health data.
We believe in a better option
We intend to secure our DNA and put it into a public trust, so that we each have a say in how our DNA and biodata is used.
WHY IT MATTERS
Why protect the 23andMe member DNA data?
Trust
Nearly 2 million users have lost trust and requested data deletion, creating a chilling effect on current and future research and slowing breakthroughs for individuals and all of us.
Transparency
The lack of transparency in this sale process further erodes public confidence, raising fears about hidden motives, undisclosed buyers, and the fate of sensitive genetic data.
Research
23andMe hosts one of the world’s largest genetic research biobanks. But when trust and transparency break down, research suffers—individual participation drops, and the path to new discoveries and cures grows longer.